Sunday, September 7, 2014

Update on Callie

Praying for Callie


 Callie went to the  pediatric neurologist on Friday..  She has  Juvenile  Epsilepsy
It is not the kind , that she will out grow. She  will have  to take meds
the rest of her life. They have started her on  these. and will work to
get them  regulated.  She is still having seizures at night.  She has 3 types
of seizures. They are:
1- The convulsive type-  which is the bad ones. like she had last Thursday, when she
quit breathing and required CPR.
2- Myoclonic Seizures-  this is where she has the jerking/spasm on the right
side of her body.
3-small seizures  [during her wake hours]. that only last 8-10 seconds.  The doctor
said. she nor anyone else  would notice it. But,  she is doing this so  much,
and  has been for a long time. that is why she is always so tired, and needs
sleep.

 We are very sad, that  she has to deal with this , for the rest of her life. But, are
so thankful , that it is treatable with medicine. We know, the  outcome,
could have been so much worse.

I want to say a special thank you to all my blog friends. I thank you so much
for  all your prayers and thoughts. May God bless each of you.

ps.. went by  to see her after church.. she is still sleeping a lot, and  not
feeling well.. Hope the medicine gets regulated, and she feels better soon.

25 comments:

  1. Oh my dear Judy, so awful but so good to know what it is. If it is any consolation, I have several adult friends who live with epilepsy and are productive, successful people. Medication and diet are the important things. I hope the hospital gives your family information on diet too. Not hat t her age she will be having to give up coffee and wine!

    ReplyDelete
    Replies
    1. Maryanne, thank you so much.. Your encouragement is so wonderful . I appreciate it so much. The doctors have told them about the diet..[which is going to be difficult, since she is tiny/tiny and doesn't eat well at all..]

      Delete
  2. Oh Judy...my heart is with you all...we will continue to pray for Callie and all of you...praying for strength, understanding, patience, wisdom. So thankful that the doctors were able to diagnose this...and that there is treatment. So thankful that you have a loving family to support you all at this time.
    Sending hugs, prayers, and our love
    Laura, Preston, Joshua, Daniel and Samuel

    ReplyDelete
  3. Thank you Laura, Please continue to pray for Callie. and thankyou for your kind words..

    ReplyDelete
  4. Dear Judy, still thinking of you and will continue to pray for Callie. I pray they can get her meds straight quickly.
    Robin

    ReplyDelete
    Replies
    1. Robin, thank you so much. your prayers mean so much to me. My prayer too--- to get the meds regulated and Callie to feel better. she is having such a hard time right now...Please continue to pray.

      Delete
  5. Judy, I'm so sorry that Callie has to face this life-long challenge. It is good that she has a diagnosis, is getting treated, and has such a supportive family. I'll pray for Callie's continued improvement. God Bless.

    ReplyDelete
    Replies
    1. Thank you Andrea. I appreciate your prayers and your comforting words.God bless you too.

      Delete
  6. This will be very difficult for Callie to deal with emotionally, so she will need lots of support, as well as medication. One of my friends has a son who has done very well, and he had the same issues, but as a teenager he found it very difficult emotionally. So lots of thoughts and prayers still.

    ReplyDelete
    Replies
    1. Thank you so much Sarahliz. you are right-- not only is Callie still feeling bad and still seizuring. but she is having a hard time emotionally.. A friend of the family has a teen age boy, who went through this several years ago.. and is now regulated with meds, plays sports and doing well.. One Callie is doing better. Cindy is going to get with them, and let Callie and this young man talk.. we feel it will help her emotionally. thank you so much Sarahliz.

      Delete
    2. Yes, I think that is a good idea - speaking to someone who knows what it is like - the rest of us do not have the experience to know.

      Delete
  7. Continued prayers for her. I hope the medicine starts helping quickly. God bless.

    ReplyDelete
    Replies
    1. Thank you so much.. I too pray the meds start working real soon. They told us , it would take awhile to get them regulated.. the doctor said , she is at one dose age wise, but weight wise , she is at another, so they are having to start low and gradually increase.. I am afraid, it will be a slow progress [hope not]

      Delete
  8. Judy...we may be 'just blog friends'. but you have enriched our lives with kind words, encouragement, and a written smile. You share yourself with us, and we love you for it. Rest and be assured that you are loved back, and we continue to wrap you in His love during these early days of sweet Callie's diagnosis. We are trusting in a bright future for all of you, and are thankful for good medical care....xxoo Deedy

    ReplyDelete
    Replies
    1. My sweet friend.. thank you .thank you. You encourage me so much. thank you for all your prayers.. hugs,hugs

      Delete
  9. This comment has been removed by the author.

    ReplyDelete
  10. I am sure it is some relief to know exactly what is going on with your sweet granddaughter, but yet so discouraging to realize the finality of the disease. I pray God grant peace, strength and wisdom to Callie and to her parents. May God bless you too my friend.......huggs

    ReplyDelete
    Replies
    1. Thankyou Shelly. We are so proud to know what is wrong,and now can work on getting her better. God bless you too.

      Delete
  11. Judy, I am so very sorry to hear about your sweet granddaughter. A 13 year old should not have to be going through so much, and should only have to be concerned about normal 13 year old girlie things. I cannot imagine what you, her mother and father, and extended family must be going through.... I truly cannot. I will pray for Callie and your family. We have a great God who can do mighty and miraculous things. Please give Callie a hug from all your blog friends!!
    P.S. Is there an address we could send her a card? Maybe let us know through e-mail for privacy? Thought that might brighten her spirits?

    ReplyDelete
    Replies
    1. Lisa, thank you so much for your prayers and your thoughtfulness, I appreciate it so much. Callie would be thrilled with a card.. I will email you the address.
      God is so awesome, I know that their is a reason for this .. and He will help Callie through this, and help us to deal with it. Please keep praying for her.

      Delete
  12. More HUGS and prayers. I am so sorry to hear this. God will see her through it.
    "I can do all things through Christ who gives me strength."

    ReplyDelete
    Replies
    1. Thank you Stacy... She is still having small seizures but they are getting the meds regulated, and she is improving.. thank you for the prayers.

      Delete
  13. Prayers for you Callie! I have a granddaughter Callie too, but her is spelled Calleigh. I will add her to my prayer chain.

    ReplyDelete
  14. Thank you for the prayers for Callie.. [How nice ,we both have a Callie].

    ReplyDelete